Christmas

Yesterday I went to donate blood.

It was the first time, so I was very scared, and they took about 450 ml, but after that I was feeling great!

I was thinking that probably this will help a life.

It's Christmas. Please think to the others, who are in need!

Photos: http://picasaweb.google.hu/kkisslaci/Blood?authkey=ibq_El8yB2c#

National Meeting in Buzias

On 29th of November was organized the meeting of our Romanian Hemophilia Association. Our host was the Clinical Medical Center Cristian Serban of Evaluation and Rehabilitation for Children and Adolescent with Type 1 Diabetes Mellitus and Hemophilia.

It was a national meeting, so people come from every corner of the country.

In the beginning Mr. Andrei Daniel our vice-president presents all the activities of the national association. It was a very rich day. There were many campaigns, conferences and found rising activities.

Then Mrs. Prof. Dr. Margit Serban tells us about her impressions toward our association. She retired from the presidency a year ago.
She said that we are on a right path, but she warns about the possible dangers too.

Then there was a free discussion about our problems and future projects.
I am very happy that everybody approved the twinning project with the Hungarian Hemophilia Society. I know that we shall have a lot of work but I think that this will be a new possibility to fight for those who suffer of hemophilia.

At the end I presented the Help for Hemophilia campaign and its results.

Before we went home, everybody agreed that 2008 it was one of our best years of activity.
Photos from the meeting and fom my travel: http://picasaweb.google.hu/kkisslaci/Buziasnov29?authkey=RbaTgr-lmJI#

Covasna County Hemophilia Meeting

On 9th of November, our local association organized a meeting for it's members.

We were very happy to meet each other again because we didn't have the opportunity to talk since 17th of Mai, when we started the campaign.
At the beginning of our meeting I presented the campaign and it's results.

Then we were discussing about our future projects. We would like to do a twinning with the Hungarian Haemophilia Society. We are thinking to be a bridge between the two national associations: the Romanian and the Hungarian.

We have other projects too, but I shall write about that later.

Then we had a discussion about the factor supply. We have problems, but we shall see more clear when we participate in December at our National Conference.
We were very happy to have guests between us. They went from Brasov County. They want to organize their local association. They were here to learn from our experience.

So, things are going forward!

Home

I’m at home again. Now, when I look backward on my project, I think that it worth the effort.
From now on, no Ministry Of Health from Romania can dare to say that the hemophilia patients have no problems.
From now on, we are not numbers writen on a paper and lost somewhere in a case.
From today we are truly existing!
You can find the interviews and stuff of the press conferences:

in Romanian:
http://www.libertatea.ro/index.php?section=articole&screen=stire&sid=195180

http://www.sanatate.eu/stiri/203?task=view

http://stiri.itbox.ro/stiri-online/sanatate/bolnavii-de-hemofilie-cer-sprijin-din-partea-statului.html

http://www.sanatateatv.ro/index.php?actiune=read&id=1003

http://www.topmedici.ro/index2.php?option=com_content&do_pdf=1&id=1641

http://www.apropo.ro/cotidian/social/hemofilia-distruge-copilaria-2705083

http://www.telegrafonline.ro/1211144400/articol/54390/tratarea_bolnavilor_hemofilici_ca_si_inexistenta_in_romania.html

http://forum.transilvaniaexpres.ro/viewtopic.php?p=3378&sid=f8dcbb4d44984311f5dcfc18a46fe101

http://www.gandul.info/societatea/80-dintre-hemofilici-sunt-infectati-cu-hepatita-din-cauza-tratamentului-primitiv-video.html?3932;2648252

http://www.stirilocale.ro/Barbatul_plecat_pe_bicicleta_la_Istanbul_pentru_a_atrage_atentia_asupra_hemofiliei_a_revenit_in_tara_IDN504273.html

http://stiri.acasa.ro/articole/societate/80-dintre-hemofilici-sunt-infectati-cu-hepatita-din-cauza-tratamentului-primitiv

http://realitateacovasneana.ro/news/news.php?item.67.5

http://www.telegrafonline.ro/pdf/16cd98984d7dd5825c2bfd9b8ec9fd0f.pdf

http://www.presaonline.com/stire/barbatul-plecat-pe-bicicleta-la-istanbul-pentru-a-atrage-atentia-asupra-hemofiliei-a-revenit-in-tara,287029.html

http://www.evenimentulzilei.ro/articole/detalii-articol/803817/O-mie-de-kilometri-pe-bicicleta-pentru-fiul-hemofilic/

http://www.romedic.ro/stiri-medicale/Stiri_interne_0568/Cu_bicicleta_la_Istanbul,_in_sprijinul_bolnavilor_de_hemofilie_06204.html

http://www.stiripescurt.ro/stiri/o-mie-de-kilometri-pe-bicicleta-pentru-fiul-hemofilic/42132.html

http://cultural.srr.ro/arhiva/arhiva3.shtml?station=2&year=2008&month=5&day=19

http://evz.ro/articole/detalii-articol/2972/Baiatul-care-nu-are-voie-sa-se-joace/

http://www.alaturidevoi.ro/ro/php/afis_articol.php?id=1356&afiseaza=da

http://realitateacovasneana.ro/news/print.php?news.427

http://www.ziuausa.com/display.php?id=8807&data=2008-05-21

http://www.9am.ro/stiri-revista-presei/a/92682/a

http://www.brasovultau.ro/index.php?pag=nw&id=8118&p=un-brasovean-va-parcurge-1000-de-km-pe-bicicleta-pentru-a-protesta-impotriva-hemofiliei-video.html

http://www.agenda.ro/images/editions/6/631_6267.pdf

http://www.radiomures.ro/ro/stiri/stiri.php?year=2008&month=05&day=20

http://www.sanatateatv.ro/?actiune=read&id=862

http://www.medik.ro/info-medical/Un_tratament_mai_bun_pentru_hemofilici!.php

http://www.buletindestiri.info/tratarea-bolnavilor-hemofilici-ca-si-inexistenta-in-romania/

http://www.stirilocale.ro/covasna/O_mie_de_kilometri_pe_biciclet_pentru_fiul_hemofilic_IDN478965.html

http://www.ziare.com/Cu_bicicleta_pana_in_Turcia_ca_sa_si_salveze_fiul-212902.html


Hungarian:
http://www.szekelyhirmondo.ro/article.php/Kisfiáért_kerekezik_Isztambulig/6808/

http://pluszportal.ro/web/index.php?option=com_content&task=view&id=1925&Itemid=2

http://www.3szek.ro/modules.php?name=3szek&id=6519

http://www.erdely.ma/jotekonysag.php?id=36763

http://umsz.manna.ro/tarsadalom/bringan_a_hemofilia_kezeleseert_2008_05_20.html

http://www.erdelyfm.ro/hirarchivum.php?nap=2008-05-19

http://www.erdely.ma/eletmod.php?id=36710

http://www.szekelyhirmondo.ro/article.php/Remény-a-hemofíliásoknak/7604/

Turkish:

http://www.yesilyurtgazetesi.com/detay.asp?hid=4406

http://www.haber7.com/haber.php?haber_id=322330

http://haber.mynet.com/detay/saglik/Kanamaya-dur-demek-icin-geliyorlar-/26Mayis2008/X1211790499937

http://www.haberler.com/istanbul/

http://www.arabul.com/haberana.aspx?id=411255&AspxAutoDetectCookieSupport=1

http://www.habersaglik.com/default.asp?Act=Dt&CatId=1&NwId=78651

http://www.ozgurhaber.com/hasta-oglu-icin-pedal-ceviriyo-2172491/

http://www.haberler.com/hemofili-hastasi-oglu-icin-pedal-cevirecek-haberi/

http://www.eczacidergisi.com/

http://www.trakyanethaber.com/yeni/haber.asp?id=11008

http://www.habervar.com/

http://www.cagdaskitap.netteyim.net/haber/Spor/hemofili_hastasi_oglu_icin_pedal_cevirecek-haberi-12270.html

http://www.gazeteint.com/news_detail.php?id=2521

http://haber.eglenceseli.com/5680/hemofili_hastası_oğlu_için_pedal_çevirecek.html

http://www.sporveskor.com/arsiv.asp?katID=12&s=1

http://www.harbiforum.net/guncel-haberler/57883-hemofili-hastasi-oglu-icin-pedal-cevirecek.html

http://www.cagdaskitap.netteyim.net/haber/Spor/song%20dan_kartal%20a_mesaj_var-haberi-12248.html

http://www.haberler.com/romanyali-laszlo-kiss-oglu-icin-bisikletle-turkiye-haberi/

http://www.yesilyurtgazetesi.com/detay.asp?hid=4406

http://www.aksam.com.tr/haber.asp?a=119290,3

English:

http://www.kelleycom.com/blog/labels/Kiss%20Laszlo.html

http://www.wfh.org/2/docs/Publications/Hemophilia_World/HW_April2008_EN.pdf

Durusu-Istanbul

Our Turkish friends come and accompanied us with their car on our last kms. We had an another surprise too: Turkish bikers were there for us before Istanbul! And when we arrived to the hotel..... the Turkish hemophiliacs were waiting and applauding us. It was very hard for me to keep my tears......

Thank you! Thank you for all!

Photos: http://picasaweb.google.com/kkisslaci/DurusuIstanbul

Special thanks for the sponsors:

Novo Nordisk
Orzan Spedt SRL
Biotest Hungary
Hemophilia Society of Turkey
Romanian Hemophilia Association
Hungarian Hemophilia Society
World Federation of Hemophilia
Red Cross Romania
Komenco SRL
Discgolf Austria
City Hall Sfantu Gheorghe
Terwa Romania SRL
Bike Kuckó Sfantu Gheorghe

Saray-Durusu-Karaburun

It was the most windiest day of them all. We started our trip at 6 o clock in the morning. Strong headwind. We were riding with14-15 km/h! And somethıng unusual: it was cold all day!

At Karaburun we met again the Black Sea. Our accomodation was very close to the beach. I slept wıth the sound of the sea....

Photos:http://picasaweb.google.com/kkisslaci/SarayDurusu

Kirklareli-Saray

Short but hard trip. Man, it s too hot here! On our way we met some bikers from Belgium. They did a trip around the Mediteranean Sea! It took about 2 years for them. We give to them our map of Bulgaria.

Photos: http://picasaweb.google.com/kkisslaci/KirklareliSaray