2012. november 8., csütörtök

03.11.2012 / Our Local Association at Romanian-Hungarian Haemophilia Meeting in Iasi

Iași, former capital of Moldova, is one of the biggest towns in Romania.
It was a long time ago when a meeting on haemophilia was held there.
That's why we took the opportunity by the twinning to reinforce the position of haemophilia in that region too.

Here is the program of the meeting:

1. Collaboration Between Institutions, Doctors and Patients
Prof. Dr. Vasile Astarastoaie - President of Romanian Medical Council

2. The Situation of National Haemophilia Care and Ways of Improvement
Andrei Daniel - President of Romanian Haemophilia Association

3.  European Principles of Haemophilia Care
Dr. Gábor Varga - President of Hungarian Haemophilia Society

4. The Medical Care of the Patient with Haemophilia
Dr. Alina Dascălu and Dr. Dan Răican - Regional Oncology Institute of Iași

5. The National Plan of Rare Diseases 
Dr. Cristina Rusu - Grigore T. Popa University of Medicine and Pharmacy 

6. The Role of Physiotheraphy in Haemophilia Patient 
Dr. Alina Lăcătuşu - Clinical Rehabilitation Center Cristian Serban / Buzias
Sebastian Maranga - Secretary of Romanian Haemophilia Association

7. A Life with Haemophilia
Basu Dorin - patient
8. The Role of the Family in the Life of a Haemophilia Patient
Kiss László - parent

The Twinning Meeting in Iaşi it was a real success.
Here is the article on the local TV Channel:

2012. október 8., hétfő

Haemophilia Family Day

On 06.10.2012, our local association organized the family day. There were families from our county and guests from Brasov, Harghita and Mures Counties.
In our program Trucki Mihály, our local president gives a warm welkome to the audience, then Kiss László, the secretary, presents our annual activity, after that it was programmed an educational documentary about haemophilia.
After the official part came the most important part of the meeting, when families were met, discuss, and feel good.

Our children were playing football, hide and seek ..........

It was a real good day for us!   

2012. augusztus 19., vasárnap

Ray of Hope Camp in Balvanyos

The annual national summer camp for the children who suffer of haemophilia or cancer was organized this time at Balvanyos, in our county.
The Ray of Hope Camp is very important for our children, and Mrs. Adriana Henderson, the organizer, and her foundation did a wonderful job.

Our children had real good time there.
Thank you to Adriana and to her volunteers!

2012. április 16., hétfő


We celebrate it in Timisoara.