On 6th of March the Hungarian Hemophilia Society and the Romanian Hemophilia Association were beginning a new chapter in their relationship. They met together at a symposium in Budapest at St. Laszlo Hospital.
Here is the program:
10.00-10.15 Dr. Gábor Varga - Importance of representation of haemophilia patients’ interests
President of the Hungarian Haemophilia Society, Member of the Steering Committee of the
European Haemophilia Consortium, haemophilia patient
10.15-10.40 Andrei Daniel - Haemophilia snapshot in Romania and possible way of development
President of the Romanian Haemophilia Association, haemophilia patient
10.40-11.05 Prof. Dr. Klára Vezendi - Haemophilia care in Hungary: past and present
Haematologist, Head of Transfusiology Department of Medical University in Szeged, Member of
the Haematology and Transfusiology Board in Hungary
11.05-11.30 Prof. Dr. Margit Serban - Registration of haemopilia patients in Romania
Haematologist, Honoured President of the Romanian Haemophilia Association, Head of the III.
Paediatric University Clinic in Timişoara, Director of Bone Marrow Transplant Center Timisoara;
Member of the Romanian Academy of Scientists
11.30-11.55 Dr. Rita Jáger - Role of blood bank service network in Hungarian haemophliia care
head haematologist, Director of the Blood Bank Service in Szombathely, head of the haemophilia
care in the Western region of Hungary
11.55-12.15 Caffee break
12.15-12.40 Prof. Dr. Maria-Despina Baghiu - Paediatric hemophilia care in Transylvania: needs and
haematologist, Director of the I. Paediatrics Clinic in Târgu Mureş
12.40-13.05 Dr. Zsuzsanna Szélessy - Haemophilia registry in Hungary
head haematologist in State Health Center, Budapest, Member of Supervisory Board of Hungarian
Haemophilia Society
13.05-13.30 Dr. Valentina Uscatescu – The institutional structure of haemophilia care in Romania
head haematologist, Institutul Clinic Fundeni, Bucharest, member of the board of the Romanian
Haemophilia Association
13.30-13.45 Dr. habil. Imre Bodó - Severe type 3 von Willebrand disease in Carpathian Basin
head haematologist in Szent László Hospital, Budapest, Medical Vice-President of the Hungarian
Haemophilia Society
13.45-14.00 Discussion
