In our program Trucki Mihály, our local president gives a warm welcome to the audience, then Kiss László, the secretary, presents our annual activity, after that it was programmed a workshop about haemophilia.
We invited jurnalists from the Romanian and Hungarian media and we discuss with them about our problems:
http://stiri.covasnamedia.ro/2013/10/14/cand-sangele-nu-inseamna-viata/
and
http://www.digi24.ro/Stiri/Regional/Digi24+Brasov/Stiri/Tratament+insuficient+pentru+bolnavii+de+hemofilie
and
http://www.3szek.ro/load/cikk/64375/europaban_utolsok_a_hemofilia_kezeleseben
After the official part came the other important part of the meeting, when families were met, discuss, and feel good.
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